Saturday, April 13, 2019

Woman, 31, with a rare condition that makes her skin look like FISH SCALES says she is grateful to be her

A woman who was born with a rare condition that causes her skin to appear thick and scaly has credited her self-confidence to the positive affirmations her mother made her say in front of the mirror.

When fitness instructor Brittany Mickens, 31, from Fredericksburg, Virginia, was born, she was rushed to a nearby children's hospital because doctors didn't know what was wrong with her skin, and her family was told she wouldn't live past the age of one.

As Brittany grew up, her skin grew thick, dry and scaly, but doctors dismissed this as an extreme case of eczema, prescribing her strong creams to treat her skin, which would only work for a few weeks at a time before her skin reverted to the condition it was in before.

Strength: Brittany Mickens (pictured), from Fredericksburg, Virginia, was born with a rare condition that causes her skin to appear thick and scaly

Strength: Brittany Mickens (pictured), from Fredericksburg, Virginia, was born with a rare condition that causes her skin to appear thick and scaly


Struggle: When Brittany, 31, was born, doctors weren't sure what was wrong with her skin and gave her just one year to live

Struggle: When Brittany, 31, was born, doctors weren't sure what was wrong with her skin and gave her just one year to live


Misunderstanding: As Brittany (pictured as a child) grew up, doctors mistook her condition for an extreme case of eczema - a condition that causes dry, itchy skin and rashes on the skin

Misunderstanding: As Brittany (pictured as a child) grew up, doctors mistook her condition for an extreme case of eczema - a condition that causes dry, itchy skin and rashes on the skin


Misunderstanding: As Brittany (pictured as a child) grew up, doctors mistook her condition for an extreme case of eczema - a condition that causes dry, itchy skin and rashes on the skin

Misunderstanding: As Brittany (pictured as a child) grew up, doctors mistook her condition for an extreme case of eczema - a condition that causes dry, itchy skin and rashes on the skin

'I was misdiagnosed as a child and was told that I had really bad eczema,' Brittany explained.

When I was first born I was rushed to a nearby children's hospital in Washington, D.C. because they didn't know what was wrong with me, and eventually was told I wouldn't live past a year.'

Support: Brittany credits her mother, Wanda, for encouraging her to have confidence and love herself growing up 

Support: Brittany credits her mother, Wanda, for encouraging her to have confidence and love herself growing up 

Growing up, people would stare at Brittany and notice that her skin appeared different to theirs.

'I would get a few stares, but it was rare that anyone would say anything to me about my skin. I didn't feel any different, but I knew I was different.'

But thanks to her mother, Wanda, who instilled a strong sense of self-love in her by getting her to repeat positive affirmations in the mirror, Brittany has learned to love herself for who she is.

'My mother made sure that I accepted myself and I was proud to be who I was,' she said.

'She would often make me look in the mirror and repeat, "I love you, you are beautiful," over and over again. And one day I finally realized what she was doing, and I am so grateful for her making me do that.

'She was extremely important, if it weren't for her constantly instilling positive affirmations in me, I wouldn't be as confident as I am. She never let me dwell on the fact that I was different.'





Condition: When Brittany was 18 years old, a dermatologist officially diagnosed her with a rare skin condition called ichthyosis

Condition: When Brittany was 18 years old, a dermatologist officially diagnosed her with a rare skin condition called ichthyosis


Condition: When Brittany was 18 years old, a dermatologist officially diagnosed her with a rare skin condition called ichthyosis

Condition: When Brittany was 18 years old, a dermatologist officially diagnosed her with a rare skin condition called ichthyosis

It wasn't until Brittany started university at age 18 and went to a new dermatologist that she was diagnosed with ichthyosis, a condition that causes widespread and persistent thick, dry, 'fish scale' skin.

Confident: Brittany, pictured with her grandmother, sometimes gets stared at in public, but says that she doesn't let it phase her 

Confident: Brittany, pictured with her grandmother, sometimes gets stared at in public, but says that she doesn't let it phase her 

According to Mayo Clinic, the condition is caused by a genetic mutation that has been inherited from one or both parents.

A permanent cure has not yet been found for the skin condition, and the available treatments focus solely on controlling it.

However, the diagnosis allowed Brittany to finally understand why prescribed creams and medicines never worked on her skin before.

After visiting the dermatologist eight times a year for 25 years, Brittany was fed up of putting chemicals on her skin for them to work and then eventually stop working.

Therefore, she has opted for a natural approach to her skin care, which involves using natural shea butter with essential oils, gold bond ultimate radiance renewal and cocoa butter Vaseline after a shower.

She also began using Jamaican black castor oil on her skin at night.

Realization: After being diagnosed with the condition, Brittany finally made sense of why prescribed creams and medicines never worked on her skin before

Realization: After being diagnosed with the condition, Brittany finally made sense of why prescribed creams and medicines never worked on her skin before


Family love: Brittany, pictured with her family, said that her family have been a great source of support as they encourage her to be 'the best version' of herself

Family love: Brittany, pictured with her family, said that her family have been a great source of support as they encourage her to be 'the best version' of herself


Encouragement: The 31-year-old recalled her mother regularly making her stand in front of a mirror and say, 'I love you and I am beautiful,' in order to boost her self-esteem 

Encouragement: The 31-year-old recalled her mother regularly making her stand in front of a mirror and say, 'I love you and I am beautiful,' in order to boost her self-esteem 

'When I went to college and found a new dermatologist, that's when I found out that I had ichthyosis. Because I had the wrong diagnosis all of the medicines that were prescribed to me only worked for a few weeks,' she explained.

Brittany said that growing up with the condition was tough, but her mother, Wanda, helped build her up by regularly reminding her that she looked beautiful.

'I sometimes get stared at and asked different questions, but I don't let it consume my day. Most of the time I forget that I have ichthyosis,' she said.

There are at least 20 different types of ichthyosis and there is no cure for any of the variations of the condition.

However, moisturizing and exfoliating the skin on a daily basis can help prevent dryness, scaling and build-up of skin cells.

Brittany makes sure she keeps her skin well moisturized at all times to prevent it from becoming painful, and she has to be especially careful in the winter as the cold weather can make her skin worse.

Prevention: To treat the condition, for which there is no permanent cure, Brittany has to keep her skin well moisturized at all times to prevent it from becoming painful

Prevention: To treat the condition, for which there is no permanent cure, Brittany has to keep her skin well moisturized at all times to prevent it from becoming painful


Inspiration: Brittany, who now works as a fitness instructor, said that she is 'grateful to be me' and wants to inspire others struggling with different issues to embrace their differences 

Inspiration: Brittany, who now works as a fitness instructor, said that she is 'grateful to be me' and wants to inspire others struggling with different issues to embrace their differences 


Positive: The 31-year-old said that although her journey isn't easy, remaining positive is the key to coping and living with the skin condition 

Positive: The 31-year-old said that although her journey isn't easy, remaining positive is the key to coping and living with the skin condition 


Positive: The 31-year-old said that although her journey isn't easy, remaining positive is the key to coping and living with the skin condition

Positive: The 31-year-old said that although her journey isn't easy, remaining positive is the key to coping and living with the skin condition

She explained how her family have always supported her and are proud of her embracing her difference.

'My family and friends love it and have always encouraged me to be the best version of myself,' Brittany said. 'My tribe is always uplifting me and have told me that they admire me and my strength.

'I absolutely love me some me. I am grateful to be me. The way I feel about myself keeps my attitude positive and want to inspire others.

'To others, I would say always love yourself and you were chosen to deal with this for a reason; it's all in how you deal with it. Perspective is key, always remain positive and it's best to work on your heart first.

'The journey is not always easy, but you're here, so do it with a smile,' she added.

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